1. Q. Tell us about yourself?(Hobbies, music, etc.)
A. Well, my name is Matt. My hobbies consist of many things, some of them run together most of the time. I am a huge guru on computers, of all brand and models. But mostly everything that is made by apple! Beside all of that I have done a few broadcasts, and podcasts. I am also an audio engineer, as well. School, no. I learned all of this on my own for a few years. Since 2007 till now! I am a huge electronic/techno/dance fanatic, down the line, I am in the process on broadcasting mixes. I love to be a local DJ, and spin music for the dancing people. Podcasting, and broadcasting would be in the works, record and replay the mixes I have mashed up. I am also an artist, I created M.A.A.D (Matt's Arts And Designs) recently. For a simple charge, I will draw portraits for people, not only that I will create logos for organizations and clip art for those who wants those done. A website will be in the works, so far paypal and an email is already set up.
2. Q. Drawing is one of your favorite pastimes. In what ways have you used your talent to gain awareness about Moebius Syndrome?
A. To show people that there are creative people out there, one who has moebius is the outside shell. That might not be as perfect, explore on the inside with their personality and spirit. Put your mind to it, you can do it. If not then it if you get a pinch, that just means your mind gave you a bite on the bright side of life. Yes, I got that from Mel Brooks, Holy Grail.
3. Q. How do you educate the public through your Youtube broadcasts?
A. I have one video on youtube now, that explains to the mass that I have a rare syndrome. "Moebius Syndrome" I told them what I knew at the time, the video was dated back in 2007, in which I will re-do with correct information. Not sure that anyone was aware I made that error but seems to me that they took in the information! I plan on continuing this so people around the world has a glimpse of what this is and what makes a difference on how others lives their lives
4. Q. You recently drew your own self-portrait. Describe how you see yourself in regards to Moebius Syndrome?
A. I drew myself, twice. Once for school, in ink. Won best of show for an art show I which submitted back in 1997-98! I redrew myself, years later so I can still show off my talent. It was also something I wanted to do again, that way you can see how much I aged, and how much of an artist that I became,
5. Q. After attending a Moebius Syndrome conference, tell of your experiences and what others have to look forward to?
A. Community, and the acknowledgement of people around you. You might be nervous around people, but let them know this that you are. It will take less then a day to warm up, it did for me. Once you know you will meet people and soon you know it the next day will be having breakfast with them!
6. Q. What advice would you give others with Moebius Syndrome who are interested in broadcasting their experiences online?
A. first) be yourself second) relax third)don't rush into your dialogue, take a few once you feel up to it. For those who reads this and is already on youtube, learn to ease up a bit. Take your time, before you are a reviewer or something more, learn to vlog first! It took me years to get suitable behind a camera, and I started my stuff at a local apple store. Also, there will be haters be aware of this. Let them know nicely, learn from the critics. You will be liked and people will say good and bad things… remember never give up
Fact: Did you know I was on the news, and in the paper? Look where it's gotten me!!
7. Q. How would you make it easier for those with disabilities to access information online about Moebius Syndrome?
A. My friends Google and wikipedia, we both like to party… Be aware, google likes to hog all the fame. Being a search engine and all.. Or just go to the main website www.manyfacesofmoebiussyndrome.com
8. Q. If you were given the opportunity to write and illustrate your own book about Moebius Syndrome, what would be the highlights?
A. I would put a comically twist to this, if I had the guts to do something like this.