Ladies & Gentlemen,
I’m sending out this letter to inform you that we the men, women, children, and family members of those affected with the condition known as Moebius Syndrome would like to take a moment of your time to request consideration to make the date of January 24th a National / International Awareness Day for Moebius Syndrome. The date of January 24th is significant to Moebius Syndrome because that is the date in which Paul Julius Möbius, the neurologist who discovered the disorder was born in 1853.
I honorably request to begin a petition to set into motion the necessary actions to make the date of January 24th National/ International Moebius Syndrome Awareness Day.
As an act of keeping record for those who wish to sign such a petition, I ask you to click on the following link and send us an email with your name and a daytime contact number. email@example.com
Donnie Lee Downs, father of a five-year-old son with Moebius Syndrome, and a Board Member of The Many Faces of Moebius Syndrome website.
If you are on facebook you can become a member of the cause by clicking here!
If you have a facebook account you can also join the cause by clicking here
To watch the Moebius Syndrome Awareness Video click here