Hello there, my name is Matt. I am 31 years old, and I have moebius syndrome. And here is my story:
I have lived in the state of California all of my life, born and raised. I was born in Torrance at the Little Company of Mary, on November 18th 1977. I was told they diagnosed me with Moebius when I was just a month old, my case of Moebius is rather rare. But there are a few stims of moebius that are still intact. Such as dental and vision, being 31. Living a wonderful life, I have grown up very much.
More about myself, which you might find interesting. Dealing with moebius is a thing of the past for me, I know that I have it. I just live on like the rest of the people who has it! I have found a hobby that I truly love, that is technology. Computers, are my big passion. Also what I have found out that I enjoy doing is broadcasting, internet radio and broadcasting. Podcasting! I am even on itunes. for my podcasts...
I enjoy doing the things that I love, with me having moebius syndrome. I have shined alot of light on friends whom has the same or something different of what I have! People calls me the godsend, of all things.
A note to all who reads this passage by me; "It doesn't matter what you are, its what you are on the inside. You have a voice, it needs to be heard. If it's by letter, email. a phone call... Be proud for who you are.."
Hey there, everyone. You all might know me, for those who don't here is what has been happening to me since the last time you read the portion about me. Nothing new has happened, other then I have finally got a few things healed. Some of you all knew what was going on, I have to say that everything is now healed. I am writing this on the 4th of January, by the time this is submitted and on the website link you are now seeing. I will have a brace to protect my tendon from the surgery I had a few months back! So another year or less will determine on how long I will have to wear this, without it I can walk like a rockstar but for protection purposes it is best to follow the doctors wants. Only looking out for the best, even you might think you do not need such things. To be honest, never go with your own judgment on things. Worse comes to worse, doctors knows best.
For now, I been unemployed for a year. I have to say, I love not working but working would be nice. While I am not working, I started my own little business. Since I am known to be a wonderful artist, I started to draw peoples portraits and soon after I was thinking on doing other things then just that. A Variety would be a tad better and not doing just one thing, I can multitask well. Soon I received for Christmas, a set of Posca markers. Google it, they are paint markers that can be written on just about any surface. I also got some canvas for Christmas for them, To know more on this product. Youtube Posca markers, if you see Joseph Tubb. Watch his stuff, they are awesome. Got me the idea on brighten up art and as for me I am alway out for looking for new things to liven my art, to make it better.
New years resolutions anyone? I got mine, this year will be a goal of a life time for me. This year for 2012, 0r later this or next year. Depends on how close I am to my goal! Is to move to Finland, why there you might ask. Well, I am a descendant of Finland, my parents were from there and I like to move to the cleanest country and plus I have a few new friends and also I known someone who I been talking to online for 14 years. So the power of my art or whatever I do to make this happen, that is what is going to happen. A big step yes, but it will be worth it. So that's what's been happening with me,as for what I said previous, that is still my goal too. To be an online personality, but Iâ€™d be a resident in Finland. Call it a dream, but this is more of a reality then a dream.
click on image to like us on facebook
click on image to follow us on twitter