I have a two year old son, named Kash who has Moebius Syndrome, he was diagnosed when he was 3 weeks old. We live in Baytown, Texas (right along the outskirts of Houston). I have recently teamed up with a group of Texas Moms who are part of the Children’s Craniofacial Association (CCA). We are proud to be the organizers of the 1st Annual Texas Moms’ 5K (certified) for CCA; a charity race to benefit Children’s Craniofacial Association (www.ccakids.org). CCA is a 501(c)3 non-profit organization that helps families, like ours, with surgery expenses, travel accommodations, emotional support and many other needs. Texas Moms’ was created in honor of our 2 year old son Kash who was born with Moebius Syndrome in 2009 and other children like Wade, who was born with Pfeiffer Syndrome in 2007, Ashley who is 7 years old with Apert Syndrome, and Jonathon who is 14 years old with Apert Syndrome. We are all Baytown/Houston area families getting together to create one big event that will be held October 8, 2011 and take place on the grounds of Lee College in Baytown, TX. These kinds of events attract many local and regional participation and we are anticipating well over 400 attendees.
As parents of a child with a craniofacial condition we have made it our mission to raise awareness on behalf of Kash and all children born with facial differences. We have been featured in local newspapers like the Baytown Sun and are active in the special needs community in our area and beyond. The Great Day Houston morning show on KHOU is interviewing our CCA families and Greg Groogan from Fox 26 News is also doing individual interviews with 7 of our CCA families in hopes to attract awareness and also connect other families in need with the CCA.
CCA is a charitable non-profit organization located here in Texas that benefits families all over the world. These funds will help provide assistance to children and families where ever needed. CCA supports families monetarily, emotionally, educationally, socially—in so many ways imaginable, and we want to insure that this support is available to other families for a long time to come. Their support is not limited to children born with facial differences like a genetic disorder or cleft lip/cleft palate; in fact they assist children who may have suffered a trauma that left them facially disfigured such as cancer, a burn accident, or dog attack.
Our event will feature local entertainment for families like vendor booths, gourmet ice cream truck, food vendors, a kid’s play area including face-painting, moon walks, slides, obsatcle courses, air brush tattoos, balloon artist, video game stations, cotton candy, popcorn. Meet and greet with The Houston Texans Cheerleaders, the 5k certified run and kids’ dash. Dr. Jane Edmond from Texas Children s Hospital, a specialist in craniofacial disorders, will be speaking at the event. (She has also graciously agreed to do interviews leading up to the event). To go along with CCA’s slogan “Beyond the face is a heart,” we are encouraging race participants to come dressed in their wackiest costume for the event. We will have a HUGE live and silent auction. The Push Water Band (voted) best live band of 2011 by Texas Music Awards) will perform a free concert!
We are so excited to raise some money for this wonderful organization and give back to them since they’ve given so much to our families!
Children s Craniofacial Association
Empowering and giving hope to individuals and families affected by facial differences
CCA envisions a world where people are accepted for who they are, not how they look.
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